So much has happened since my last post. More chemo adjustments so that she is now at 125% on all oral chemo, a fall which resulted in a CT scan and MRI, lots of ups and downs with steroids. Most importantly was the MRI in April. The results were about what we expected. The MRI confirmed what the CT scan reflected, Elizabeth has mild damage to her lower left lobe of the brain, directly caused by her spinal methotrexate chemotherapy. It is shown in research that 20% of patients receiving spinal MTX have this damage, but many oncologists feel that the number is greater they just don't have reason to investigate it yet. So, what now? Well, not much can be done. We had to make a decision based on a lot of what if's?! So, she had 2 spinal treatments left and we have decided to take a middle of the road approach. We could have opted to continue with both, but the question would be- could more damage occur? Or, we could cancel both, but what would that do to the leukemia? So, we have decided to cancel the April spinal MTX treatment and have another MRI done in June to measure the damage. If the damage remains the same and has not gotten any worse, then we will proceed with the July spinal MTX. If there is more damage, then we will cancel that one as well. However, our oncologist felt like if the damage was "growing" or getting worse, we would know before that point. Our indicators would be changes to her cognitive skills, motor skills, and/or seizures. We will be having her next MRI on June 18th to decide our next steps, I seem to find myself looking for things, hoping I don't see any changes. We also had some cognitive testing done that showed average IQ and abilities- thank you! And, we have continued to try and give back to the community with dinners, fundraisers for programs, etc. Thank you all for your continued support of us, we are able to continue with her care because of your donations.