Elizabeth had her MRI at the end of June to monitor the white matter damage in her brain. The results are the same- no changes at all, which is good; better news would have been that it is improving, but that may not happen, as long as there are no side effects, we take it as a war wound in this battle against cancer. We will check it again in 6 months to a year.
Her last intrathecal methotrexate and port vincristine was administered on July 5. Overall, she handled the procedure well. She went in pretty happy, the last ride down the hallway for her and mommy on the bed. She did begin coughing as they administered the anesthesia and then again went into an attack at the end of the procedure. This led to longer monitoring in the procedure room which left me fretting. We ended the day with an x-ray to make sure her lungs were clear, and all was fine. During the spinal chemo they did a cranial pressure check as part of the study she is participating in, again it came back high, but no side effects so we just don't worry. I truly believe that they will find that all children receiving intrathecal chemo will have high cranial pressures and just some have side effects of headaches, dizziness, nausea, vision problems, etc
Although active treatment will be ending, we will still have a lot of worries, and monthly checks of her blood. The prayers cannot stop and the burdens we have acquired will be around for a while.